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ACHD or GUCH is the terminology used to mention about adults/ grown-ups living with congenital heart diseases either corrected or uncorrected. These adults belong to a special category as their needs become different once they grown into adulthood.
Mentioned below are some of the challenges faced by them:
Lifelong Medical Care:
Includes regular check-ups or hospitalisations
Arrhythmias:
Abnormal heart rhythms are common and can lead to disturbing symptoms like palpitations, dizziness
Heart Failure:
Over time, the heart can become less effective at pumping blood, leading to symptoms of heart failure
Endocarditis:
There is an increased risk infection of the heart’s inner lining or valves, particularly in those with artificial valves or previous heart surgeries.
Exercise Limitations:
Some individuals may have restrictions on the type and intensity of physical activities
Psychosocial Issues:
Anxiety, depression, and other mental health issues can manifest
Reproductive Health:
Women with CHD need specialized care during pregnancy. Contraception and family planning are important
Surgical and Interventional Procedures:
Some may require additional surgeries or interventions as adults
Medication Management:
Lifelong medication may be necessary in some of them
Risk of Pulmonary Hypertension:
Some adults with CHD may develop pulmonary hypertension, which can cause worsening of symptoms
Genetic aspect:
Adults with CHD may benefit from genetic counseling to understand their risk of passing the condition to their children.
Role of the Medical team:
Ensuring a smooth transition from pediatric to adult healthcare services is crucial. This involves educating the patient about their condition and encouraging them to take an active role in their healthcare.
Managing these issues requires a multidisciplinary approach involving cardiologists, primary care physicians, surgeons, mental health professionals, and other specialists.
